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Department of Public Health Sciences
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Home of the
South LondonIStroke Register SLSR
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Evaluation of the
role of the Family Support Organiser on stroke patients and their carers
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Funded
by:
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The Stroke
Association 1997-2003
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Study
team:
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Ms Katherine Daneski
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Dr Anthony Rudd
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Dr Kate Tilling
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Prof Charles Wolfe*
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Background:
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With the emphasis on shorter stays in hospital,
there is an increasing focus on caring for stroke patients in the
community. However, previous research has shown that if services are
inadequate, patients may feel abandoned, while carers may experience anxiety
and depression.
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The Stroke Association set up the Stroke Family
Support Service to cover gaps in community support, especially when formal
support ceases. Family Support Organisers (FSOs) are employed to visit families
affected by stroke, giving them information and emotional support and
helping them adjust to the changes caused by stroke.
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Tilling K, Mckevitt C, Coshall C, Daneski K, Wolfe C D.
A family support organiser for stroke patients and other carers:
Intervention design and results of a randomised controlled trial. Cerebrovascular
Diseases 2003; 16(suppl 4): 0297
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