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South LondonIStroke Register
SLSR
 
The South London Stroke Register (SLSR)
 
Funded by:
Northern and Yorkshire R&D, Special Trustees, Guy's and St Thomas' Hospitals NHS Trust 1995-2001
Stanley Thomas Johnson Foundation 2001-2003
Study team:
The South London Stroke Register (SLSR) is an ongoing population based stroke register recording first stroke in patients of all age groups. Data are collected prospectively by the registry team, comprising a specialist stroke physican three research asssociates. By using 12 referral sources cases of stroke are identified in a defined area corresponding to 22 wards of Lambeth, Southwark, and Lewisham Health Commission. The total population (234 533) is 72% white, 21% black (11% Afro-Caribbean, 7.5% West African, and 2.5% black mixed), and 3% Asian, Bangladeshi, and Pakistani. Hospital surveillance of admissions for stroke includes two teaching hospitals within and three outside the study area. Community surveillance of stroke includes patients under the care of all general practitioners within and on the borders of the study area (n=147).

The notification sources are accident and emergency records; hospital wards; brain imaging requests; death certificates; coroner's records; general practitioners; hospital medical staff; community therapists; bereavement officers; hospital based stroke registries; general practice computer records; and "miscellaneous," including notification by patients or relatives of patients. Methods are used to ensure complete ascertainment of cases.

Initial assessments are performed by a doctor. Patients are examined within 48 hours of referral to the register when possible. Subsequently, patients are followed up at 3 months by a register team field worker and then yearly by postal questionnaire.

Information collected at initial assessment includes patient socio-demographic characteristics, clinical assessment, risk factor history, disability and quality of life assessment, resource use, RCP minimum data set...