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South London Stroke Register (SLSR) is an ongoing population based
stroke register recording first stroke in patients of all age groups.
Data are collected prospectively by the registry team, comprising
a specialist stroke physican three research asssociates. By using
12 referral sources cases of stroke are identified in a defined area
corresponding to 22 wards of Lambeth, Southwark, and Lewisham Health
Commission. The total population (234 533) is 72% white, 21% black
(11% Afro-Caribbean, 7.5% West African, and 2.5% black mixed), and
3% Asian, Bangladeshi, and Pakistani. Hospital surveillance of admissions
for stroke includes two teaching hospitals within and three outside
the study area. Community surveillance of stroke includes patients
under the care of all general practitioners within and on the borders
of the study area (n=147).
The notification
sources are accident and emergency records; hospital wards; brain
imaging requests; death certificates; coroner's records; general
practitioners; hospital medical staff; community therapists; bereavement
officers; hospital based stroke registries; general practice computer
records; and "miscellaneous," including notification by
patients or relatives of patients. Methods are used to ensure complete
ascertainment of cases.
Initial assessments
are performed by a doctor. Patients are examined within 48 hours
of referral to the register when possible. Subsequently, patients
are followed up at 3 months by a register team field worker and
then yearly by postal questionnaire.
Information
collected at initial assessment includes patient socio-demographic
characteristics, clinical assessment, risk factor history, disability
and quality of life assessment, resource use, RCP minimum data set...
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